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Lysosomal And Rare Disorders Research
EIN 455312680 · VA · NTEE H80 · revenue $4,423,059 · FY 2024-12-31
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80th percentile
We compared this Executive Director / CEO's pay to 122 similar medical research nonprofits of about the same size, adjusted for VA cost of living and inflation.
DR OZLEM GOKER-ALPAN · reported title "PRESIDENT / FOUNDER" — selected as the highest-paid individual; verify the role.
How we chose them
Every comparable organization in the band — 122 in total — matched by Same NTEE major group (H), nationwide + budget 0.71–1.4× revenue, and selected by rule, not hand-picked. Peer pay is normalized to VA cost of living (BEA Regional Price Parities) and to the subject's filing year (CPI-U). Full methodology →
| Organization | State | Revenue | Total comp | Filing |
|---|---|---|---|---|
| Orthopaedic Research Society | IL | $4,445,163 | $260,019 | 990 → |
| The Curetivity Foundation | CT | $4,396,120 | $159,822 | 990 → |
| Sansum Diabetes Research Institute | CA | $4,393,121 | $271,587 | 990 → |
| Cleveland Va Medical Research And | OH | $4,390,885 | $185,446 | 990 → |
| Fshd Society | MA | $4,455,414 | $191,214 | 990 → |
| 🔒 +117 more comparable organizations — the full peer set, sources, and CSV export are included in your board report. | ||||
Generate the board-ready determination
A formatted PDF with the full 122-organization peer set, the distribution, the methodology, and ready-to-adopt 26 CFR 53.4958-6 board-minutes language — timestamped to attach to your minutes. A screenshot of a webpage isn't board minutes.