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PeerBasis
Compensation Comparability Determination

Tarlov Cyst Disease Foundation

Executive Director / CEO

EIN 205724680
TN · NTEE H50
FY ending 2024-12-31
June 9, 2026

This analysis benchmarks the total compensation of Reta Honey Hiers Rnc, Executive Director / CEO ($132,000) against every comparable organization that fit the selection criteria — 16 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 69th percentile of comparable organizationswithin the typical range

How comparable organizations were selected

16 organizations qualified on sector, size, and geography 16 within the band form the benchmarked peer set.

Distribution of comparable compensation

$2,660 total compensation of comparable organizations → $1,003,327 $132,000
$8,60310th
$21,39025th
$55,321Median
$152,99975th
$231,48590th
$132,000This org · 69th
p10$8,603
p25$21,390
p50$55,321
p75$152,999
p90$231,485
$132,000

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to TN cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateTotal revenueTotal compSource
Acus FoundationCA $52,628$49,832 990
Kids Get Cancer TooOH $53,203$2,660 990
Williams Heart FoundationIL $42,907$140,293 990
The Foundation Of The Children'sOR $42,227$11,428 990
American Eye Study Club FoundationIL $42,037$5,777 990
Mycobacterium Dx Research Lab IncCA $41,238$61,215 990
Acreditas GlobalIL $40,622$32,306 990
Chan Soon-shiong Nanthealth FoundationCA $56,979$264,062 990
Urology Research & Education FoundationTX $38,637$21,729 990
Mind First FoundationMA $58,286$198,907 990
The Foundation For Embryonic CompetenceNJ $60,778$191,116 990
Harvard Neurodiscovery Center IncMA $34,305$60,809 990
University Health Care IncWI $33,940$1,003,327 990
Radiation And Public Health ProjectincNJ $32,312$40,771 990
The Healthy Birth And Infant BrainsWY $67,642$20,374 990
Northwell Health Medical Pa PcNY $71,513$65,039 990

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to TN cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default69th
Total compensation (D + F), as reported (no adjustments)69th
Reportable pay only (column D), adjusted75th
All sources (D + E + F), adjusted44th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Reta Honey Hiers Rnc) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 16 similarly situated organizations (Same NTEE major group (H), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $132,000 is reasonable (approximately the 69th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.