Live preview — download the board-ready PDF to attach to your minutes.Download the free PDF
Email yourself a copy:
PeerBasis
Compensation Comparability Determination

Spina Bifida Assocation Of

Executive Director / CEO

EIN 237432288
FL · NTEE G55Z
FY ending 2025-06-30
June 9, 2026

This analysis benchmarks the total compensation of Demery Webber, Executive Director / CEO ($37,921) against every comparable organization that fit the selection criteria — 64 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 44th percentile of comparable organizationswithin the typical range

Benchmarked executive: Demery Webber — reported title “EXECUTIVE DI”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

64 organizations qualified on sector, size, and geography 64 within the band form the benchmarked peer set.

Distribution of comparable compensation

$2,135 total compensation of comparable organizations → $181,383 $37,921
$10,95010th
$22,47725th
$47,641Median
$65,72375th
$79,20890th
$37,921This org · 44th
p10$10,950
p25$22,477
p50$47,641
p75$65,723
p90$79,208
$37,921

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to FL cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Mattie J T Stepanek Foundation Inc MD$98,461 President $26,000 $27,344 2023
Alcanzando Inc FL$95,659 Chief Exec O $45,750 $46,960 2024
Austens Autistic Adventures TX$91,730 Director $18,725 $20,466 2024
Cleveland-rutherford Kidney Association NC$91,389 Controller $59,500 $67,175 2024
Connecticut Coalition For Organ And CT$90,661 Executive Director $70,000 $71,713 2024
Massachusetts Health Information MA$105,006 Administrative Director/cl $66,928 $65,715 2024
Livlyme Foundation CO$105,282 Director $48,000 $53,899 2022
Trisomy 18 Support Inc MI$90,139 Executive Director $50,160 $55,112 2025
Virginia Association Of Workers For The VA$106,184 Director $9,600 $9,867 2025
Melanoma Education Foundation Inc MA$88,728 President $14,000 $13,746 2024
Spina Bifida Association Of Arizona AZ$86,223 Executive Director $47,846 $50,278 2024
American Council Of The Blind OH$109,566 Executive Di $43,000 $49,763 2024
Shattuck Partners Inc MA$109,761 Executive Director $35,949 $36,340 2023
South Carolina Ovarian Cancer Foundation SC$110,142 Executive Director $41,174 $48,321 2023
Bakes For Breast Cancer Inc MA$85,248 President $6,000 $5,891 2024
Carroll County Memorial Hospital MO$111,566 President/ceo - Ccmh $30,331 $36,138 2023
University Clinical Neurologists Inc IN$112,636 Board Member $1,800 $2,135 2023
Heart Disease Research Institute AZ$82,826 President $26,175 $27,506 2024
Landon Pediatric Foundation CA$112,813 Ceo $81,000 $78,681 2023
Prep4gold VA$113,127 Executive Director $63,093 $66,563 2024
Central Coast Autism Spectrum CA$82,229 Executive Director $24,200 $22,833 2024
Global Aging Institute VA$113,500 President & Treasurer $103,000 $108,665 2024
The Airway Revolution NY$113,534 Executive Di $60,000 $59,241 2024
Mercy Outreach Ministries Inc OH$81,579 Executive Director $16,318 $19,442 2023
Songs & Smiles TX$81,482 Executive Director $46,800 $49,833 2025

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to FL cost of living and 2025 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to FL cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default44th
Total compensation (D + F), as reported (no adjustments)44th
Reportable pay only (column D), adjusted47th
All sources (D + E + F), adjusted36th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Demery Webber) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 64 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $37,921 is reasonable (approximately the 44th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.