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PeerBasis
Compensation Comparability Determination

Cure Tay-sachs Foundation

Executive Director / CEO

EIN 260256621
AZ · NTEE H128
FY ending 2024-12-31
June 9, 2026

This analysis benchmarks the total compensation of Rick Karl, Executive Director / CEO ($48,000) against every comparable organization that fit the selection criteria — 59 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 58th percentile of comparable organizationswithin the typical range

Benchmarked executive: Rick Karl — reported title “PRESIDENT”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

59 organizations qualified on sector, size, and geography 59 within the band form the benchmarked peer set.

Distribution of comparable compensation

$1,796 total compensation of comparable organizations → $215,744 $48,000
$6,70010th
$23,48425th
$32,060Median
$66,29975th
$121,40290th
$48,000This org · 58th
p10$6,700
p25$23,484
p50$32,060
p75$66,299
p90$121,402
$48,000

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to AZ cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Affinity Partners Network Inc NJ$140,894 President/ceo $30,040 $28,712 2023
Acls And Lacls Committee CA$138,380 President $30,000 $26,936 2024
Down Syndrome Foundation Of CA$137,654 Treasurer $72,600 $67,110 2023
Triangle Global Health Consortium NC$135,426 Executive Di $80,102 $86,061 2024
Wallace Rheumatic Disease Foundation CA$146,836 President $20,000 $17,957 2024
Dayton Veterans Affairs Research & Educa OH$147,034 Executive Director $22,275 $25,256 2023
Movement Disorders Foundation CO$147,641 Executive Director $55,750 $57,227 2023
Prostate Action Inc NY$150,921 Secretary $11,250 $10,882 2023
All Greater Good Foundation CA$130,726 President & Ceo $96,000 $88,742 2023
Parent's Guide To Cord Blood MD$152,063 Executive Director $103,885 $100,988 2024
Partnership For Achieving Total LA$152,961 Executive Director/board $25,330 $28,254 2025
Mcdougall Research & Education CA$153,036 President $25,000 $23,109 2023
Research Mississippi Inc MS$128,366 Executive Director $42,000 $48,639 2024
Noah's Bandage Project KS$128,245 Program Manager $62,200 $69,871 2024
Rampy Ms Research Foundation AR$154,261 President/ex $65,000 $78,215 2023
The Alliance For Longevity Initiatives VA$155,110 President $12,750 $12,801 2024
Breast Cancer Research And Assistance Fund AZ$155,484 President $29,590 $29,590 2024
Pediatric Hydrocephalus Foundation Inc NJ$156,880 President $30,345 $28,172 2024
Hawaii Medical Foundation HI$157,240 Executive Administrator $2,822 $2,704 2023
Foundation For Arthroplasty Research And IL$119,978 Executive Director $24,514 $25,799 2023
The Valhalla Fund WA$119,578 Ceo $18,342 $17,075 2024
Vincera Foundation PA$116,830 Executive Dir. $30,000 $31,108 2024
Detroit International Research And MI$116,460 Executive Di $25,992 $27,896 2024
Qigong Sensory Training Institute OR$166,373 President/ceo Board Chair $48,476 $46,809 2024
International Neuroethics Society DC$166,640 Executive Director $79,718 $72,739 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to AZ cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to AZ cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default58th
Total compensation (D + F), as reported (no adjustments)58th
Reportable pay only (column D), adjusted59th
All sources (D + E + F), adjusted47th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Rick Karl) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 59 similarly situated organizations (Same NTEE major group (H), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $48,000 is reasonable (approximately the 58th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.