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PeerBasis
Compensation Comparability Determination

Lymphangiomatosis & Gorhams Disease Alliance Inc

Executive Director / CEO

EIN 261224181
FL · NTEE G99
FY ending 2024-06-30
June 9, 2026

This analysis benchmarks the total compensation of Michael Kelly, Executive Director / CEO ($35,930) against every comparable organization that fit the selection criteria — 16 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 25th percentile of comparable organizationswithin the typical range

Benchmarked executive: Michael Kelly — reported title “EXECUTIVE DIRECTOR”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

16 organizations qualified on sector, size, and geography 16 within the band form the benchmarked peer set.

Distribution of comparable compensation

$799 total compensation of comparable organizations → $127,321 $35,930
$13,19710th
$42,23225th
$63,700Median
$81,40775th
$104,47090th
$35,930This org · 25th
p10$13,197
p25$42,232
p50$63,700
p75$81,407
p90$104,470
$35,930

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to FL cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Theos Village The Tbck Foundation PA$268,612 President Secretary $15,000 $16,393 2023
Reaction Resources Inc FL$259,710 Ceo $47,649 $47,649 2024
Resilient Sisterhood Project Inc MA$259,170 Executive Director $124,243 $118,846 2024
American Chronic Pain Association KS$256,999 Ceo $63,333 $74,985 2023
Texas Interventional Endoscopy Group TX$237,190 Director $750 $799 2024
Bleeding Disorders Of Kentucky Inc KY$237,150 Executive Di $63,000 $72,050 2024
Ok You Inc OR$233,380 Executive Director $71,850 $71,027 2024
T Leroy Jefferson Medical Society Inc FL$321,799 Executive Director $90,093 $90,093 2024
The Fibrous Dysplasia Foundation MD$322,942 Executive Di $82,142 $81,747 2024
International Association Of CA$211,790 Executive Director $50,000 $45,959 2024
Power Access Inc FL$339,295 Executive Director $49,070 $47,805 2025
International Society For Molecular FL$197,204 President $10,000 $10,000 2024
Gwendolyn's Gifts MO$188,236 Executive Director $50,000 $56,373 2024
Family Dental Care UT$357,530 President/treasurer $27,684 $31,052 2023
Addys Colors Inc VA$364,690 Ceo, Therapist $79,094 $81,293 2024
Chronic Illness Recovery TX$391,561 President $119,571 $127,321 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to FL cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to FL cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default25th
Total compensation (D + F), as reported (no adjustments)25th
Reportable pay only (column D), adjusted25th
All sources (D + E + F), adjusted25th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Michael Kelly) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 16 similarly situated organizations (Same NTEE sector (G99), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $35,930 is reasonable (approximately the 25th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.