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PeerBasis
Compensation Comparability Determination

The Lung Transplant Foundation

Executive Director / CEO

EIN 262484253
NC · NTEE G450
FY ending 2024-09-30
June 9, 2026

This analysis benchmarks the total compensation of Amy Skiba, Executive Director / CEO ($123,869) against every comparable organization that fit the selection criteria — 328 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 97th percentile of comparable organizationsabove the 90th percentile — board review recommended

Benchmarked executive: Amy Skiba — reported title “EXECUTIVE DIRECTOR”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

328 organizations qualified on sector, size, and geography 328 within the band form the benchmarked peer set.

Distribution of comparable compensation

$726 total compensation of comparable organizations → $323,362 $123,869
$13,43610th
$29,69125th
$55,651Median
$76,31875th
$95,32890th
$123,869This org · 97th
p10$13,436
p25$29,691
p50$55,651
p75$76,318
p90$95,328
$123,869

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to NC cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Hope Happens Inc MO$267,866 Dir. Of Marketing & Commun $37,421 $38,359 2024
Biomedical Research Institute Of NJ$267,661 Key Employee $50,035 $43,235 2024
Theos Village The Tbck Foundation PA$268,612 President Secretary $15,000 $14,904 2023
Empowering Epilepsy OH$268,660 Executive Dir. $72,685 $74,506 2024
Illinois Spina Bifida Association IL$268,679 Executive Director $88,556 $86,747 2023
Gaucher Community Alliance PA$268,783 Co-president $56,125 $55,768 2023
Epilepsy Foundation Of Wisconsin Inc WI$267,012 Executive Dir. $68,238 $68,971 2024
Act For Multiple Sclerosis CA$266,890 Executive Di $62,400 $52,148 2024
Heartbeat International Foundation Inc FL$266,644 Executive Director $100,000 $90,918 2024
The Autism Society Of Hawaii HI$266,429 Executive Director $62,251 $55,533 2023
Hope For Children Research Found NJ$266,013 Director $92,503 $79,931 2024
All In For Miller Inc GA$265,432 Treasurer $36,000 $35,032 2024
Tatton Brown Rahman Syndrome Community Inc NY$270,669 Executive Director $78,930 $69,027 2024
Lymphangiomatosis & Gorhams Disease Alliance Inc FL$271,042 Executive Director $35,930 $32,667 2024
North Carolina Aids Action Network NC$264,894 Executive Dir. $120,750 $120,750 2024
The Tanner Foundation For Neurological AL$264,855 Executive Director $62,308 $65,146 2024
Joe Beretta Foundation TN$271,831 Executive Director $62,391 $63,470 2024
5 Under 40 Foundation Corp NY$271,985 President $46,154 $41,555 2023
Down Syndrome Network Inc AZ$263,264 Executive Director $77,200 $73,977 2023
Down Syndrome Association Of VA$273,601 Executive Director $48,359 $45,189 2024
Mesquite Cancer Help Society NV$262,030 Executive Administrator $12,075 $11,714 2024
The Color Of Autism Foundation MI$262,020 Chief Executive Officer $85,300 $87,727 2023
Sister2sister NJ$261,907 President $28,810 $25,630 2023
Hope Lives The Lydia Dody Breast CO$261,871 Executive Di $71,880 $66,705 2024
Xlh Network Inc NY$261,780 Executive Director $64,080 $56,040 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to NC cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to NC cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default97th
Total compensation (D + F), as reported (no adjustments)95th
Reportable pay only (column D), adjusted97th
All sources (D + E + F), adjusted91st

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Amy Skiba) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 328 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $123,869 is reasonable (approximately the 97th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.