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PeerBasis
Compensation Comparability Determination

Fabry Support & Information Group

Executive Director / CEO

EIN 431890134
MO · NTEE G20
FY ending 2023-12-31
June 9, 2026

This analysis benchmarks the total compensation of Jack Johnson, Executive Director / CEO ($80,600) against every comparable organization that fit the selection criteria — 371 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 65th percentile of comparable organizationswithin the typical range

Benchmarked executive: Jack Johnson — reported title “EXECUTIVE DIRECTOR”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

371 organizations qualified on sector, size, and geography 371 within the band form the benchmarked peer set.

Distribution of comparable compensation

$171 total compensation of comparable organizations → $680,974 $80,600
$20,60710th
$41,71725th
$67,893Median
$91,88575th
$113,26690th
$80,600This org · 65th
p10$20,607
p25$41,717
p50$67,893
p75$91,885
p90$113,266
$80,600

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to MO cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Ateam Ministries AL$442,994 President And Director $65,800 $65,190 2024
Autism Society Of Texas TX$442,890 Executive Director $81,600 $77,067 2023
Me Squared Cancer Foundation TX$442,014 Executive Director - Start Date 7/16/2024 $32,813 $30,101 2024
Down Syndrome Association Of South TX$441,715 Executive Director $85,229 $78,185 2024
Nplex OR$440,776 Exec Dir $108,915 $95,496 2023
My Time Inc NY$439,914 Executive Directors $99,595 $82,533 2024
Center For Medicine In The Public NY$447,500 President $232,552 $192,712 2024
Southwest Kids Cancer Foundation Inc AZ$448,189 Executive Director $37,231 $32,836 2024
The Sickle Cell Association Of New Jersey NJ$448,862 Executive Director $55,154 $45,160 2024
The Breast Cancer Resource Center Of Santa Barbara CA$449,691 Executive Director $104,380 $82,657 2024
Help 4 Hd International Inc CA$449,867 President $54,792 $44,671 2023
Association For The Visually Impaired NY$437,032 Ceo/ed $41,132 $34,085 2024
Fishing For Md Foundation Inc FL$450,505 Executive Di $80,000 $70,957 2023
Next Step Kansas City Inc KS$436,300 Executive Director $59,855 $61,052 2023
Coryell Autism Center CA$451,173 President $12,000 $9,783 2023
National Pain Advocacy Center CO$435,642 Executive Director $176,815 $155,482 2024
Autistic Self-reliance Support Network OH$435,416 Cofounder And Co-executive Director $82,152 $79,795 2024
Good Samaritan Institute For Research And Education CA$435,247 System President & Ceo $38,737 $30,676 2024
Minnesota Colorectal Cancer Research MN$453,008 Executive Director $52,684 $49,150 2023
Pink Hands Of Hope PA$433,918 Executive Di $50,738 $47,772 2023
Ashland County Cancer OH$433,810 Executive Di $63,499 $63,499 2023
Club Parkinsons Inc KS$453,613 Executive Director $60,000 $59,445 2024
Down Syndrome Association Of Middle Tennessee TN$453,645 Executive Director $89,259 $86,042 2024
A Shared Vision Partners In Pediatric Blindness And Visual Imp CO$453,744 Executive Director $65,000 $58,846 2023
National Education Alliance For NJ$433,633 Executive Director $144,250 $121,599 2023

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to MO cost of living and 2023 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to MO cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default65th
Total compensation (D + F), as reported (no adjustments)58th
Reportable pay only (column D), adjusted69th
All sources (D + E + F), adjusted57th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Jack Johnson) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 371 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $80,600 is reasonable (approximately the 65th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.