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PeerBasis
Compensation Comparability Determination

Huntington's Disease Youth Organization

Executive Director / CEO

EIN 454955538
MI · NTEE G192
FY ending 2024-12-31
June 9, 2026

This analysis benchmarks the total compensation of Jenna Heilman, Executive Director / CEO ($110,000) against every comparable organization that fit the selection criteria — 16 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 88th percentile of comparable organizationswithin the typical range

Benchmarked executive: Jenna Heilman — reported title “EXECUTIVE DIRECTOR”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

16 organizations qualified on sector, size, and geography 16 within the band form the benchmarked peer set.

Distribution of comparable compensation

$5,925 total compensation of comparable organizations → $185,813 $110,000
$19,90010th
$26,77225th
$57,284Median
$85,25575th
$112,22390th
$110,000This org · 88th
p10$19,900
p25$26,772
p50$57,284
p75$85,255
p90$112,223
$110,000

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to MI cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Helene Foundation NC$387,297 Officer $79,040 $79,124 2024
Cancer Support Community - California CA$459,287 Executive Director $100,452 $84,037 2024
Sarah's House Of Maine ME$351,019 Executive Di $64,500 $64,422 2023
Cancer Schmancer Foundation CA$482,878 Executive Dir. $117,721 $101,393 2023
Hcf Supporting Organization TX$485,155 Executive Di $24,719 $24,664 2023
Well Being Development MN$345,334 Executive Director $28,700 $27,475 2024
Recovery On Water Inc IL$489,596 Executive Director $87,500 $83,342 2024
Slk Health Services Corporation MD$514,105 Executive Director $40,790 $38,038 2023
Chris Elliott Fund WA$529,069 President & Ceo $102,500 $88,909 2024
The Cancer Care Fund Of CT$291,325 Executive Dir. $6,522 $5,925 2024
Nightingales Harvest OH$280,595 Ceo $14,400 $15,213 2023
Malecare Inc NY$571,570 Executive Director $206,156 $185,813 2023
National Fabry Disease Foundation NC$592,005 Chair $126,174 $123,053 2025
Healing Strong Inc GA$596,652 President/ex $50,000 $50,146 2023
Empower Mississippi MS$610,844 President $22,786 $24,587 2024
The Diabetes Family Connection NC$622,543 Executive Dir. $40,962 $42,217 2023

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to MI cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to MI cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default88th
Total compensation (D + F), as reported (no adjustments)81st
Reportable pay only (column D), adjusted88th
All sources (D + E + F), adjusted75th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Jenna Heilman) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 16 similarly situated organizations (Same NTEE sector (G19), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $110,000 is reasonable (approximately the 88th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.