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PeerBasis
Compensation Comparability Determination

Autoimmune Encephalitis Alliance Inc

Executive Director / CEO

EIN 461584730
NC · NTEE G99
FY ending 2023-12-31
June 9, 2026

This analysis benchmarks the total compensation of Margaret Poe, Executive Director / CEO ($90,617) against every comparable organization that fit the selection criteria — 142 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 94th percentile of comparable organizationsabove the 90th percentile — board review recommended

Benchmarked executive: Margaret Poe — reported title “PROGRAM DIRECTOR”, selected as the organization's highest-paid individual — no exact title match, so confirm this is a comparable role.

How comparable organizations were selected

142 organizations qualified on sector, size, and geography 142 within the band form the benchmarked peer set.

Distribution of comparable compensation

$1,267 total compensation of comparable organizations → $267,648 $90,617
$10,39810th
$20,68925th
$39,561Median
$58,93775th
$75,54990th
$90,617This org · 94th
p10$10,398
p25$20,689
p50$39,561
p75$58,937
p90$75,549
$90,617

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to NC cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
The Medical Staff Of The California CA$143,209 President $30,000 $25,071 2023
Maximum Hope Foundation CA$144,714 Key Employee $39,231 $31,844 2024
Affect Change Inc TX$141,202 Executive Di $48,000 $45,136 2024
Lupus Foundation Of New England Inc MA$147,227 Presidentexec Director $89,550 $75,646 2024
Brave Men Inc OH$139,108 Executive Director $36,022 $34,941 2025
Northeast Louisiana Sickle Cell Anemia Foundation LA$148,756 Executive Director $36,990 $39,420 2023
Connect Thru Cancer PA$138,775 Executive Director $64,650 $60,605 2024
Federation Of The Blind Of Sc SC$138,297 Executive Director $23,940 $25,162 2022
Resurrecting Lives Foundation OH$137,305 Founder/executive Director $45,000 $44,804 2024
Big Hearts To Little Hearts NJ$136,094 President $21,883 $18,366 2024
Melanoma Know More OH$151,878 Executive Director $88,557 $88,171 2024
Advocates For Alzheimer's Care Inc GA$135,795 Executive Director $21,392 $20,219 2024
Southwestern Ohio Hemophilia Foundation OH$152,580 Executive Director $45,186 $46,318 2023
Sean Loring Classic OH$152,756 President $34,250 $34,100 2024
Partners To The World Inc GA$133,500 President $51,151 $48,347 2024
The Lily Pad Foundation MS$132,852 Executive Director $50,000 $52,349 2024
New Hampshire Service Office-nh Area Assembly Aa NH$157,673 Secretary $18,145 $16,215 2023
Team Up For Down Syndrome KS$130,076 Secretary $4,491 $4,696 2023
Caring Ambassadors Program Inc OR$128,601 Executive Director $74,923 $67,338 2023
Turner Syndrome Foundation Inc NJ$159,399 President $48,833 $40,986 2024
Oklahaven Childrens Chiropractic Ce OK$128,347 President And Chiropractor $70,000 $74,598 2023
Multiple Sclerosis Society Of Colorado CO$128,133 President $42,000 $38,976 2023
Fighting To Win Inc SC$160,178 President $23,587 $23,815 2023
Starlight Therapeutic Riding Center Inc TX$127,182 Executive Director $56,683 $53,301 2024
Nicu Parent Network Inc IN$161,019 Executive Di $35,000 $35,721 2023

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to NC cost of living and 2023 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to NC cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default94th
Total compensation (D + F), as reported (no adjustments)94th
Reportable pay only (column D), adjusted92nd
All sources (D + E + F), adjusted89th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Margaret Poe) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 142 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $90,617 is reasonable (approximately the 94th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.