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PeerBasis
Compensation Comparability Determination

Empowering Epilepsy

Executive Director / CEO

EIN 471250482
OH · NTEE G01
FY ending 2024-12-31
June 9, 2026

This analysis benchmarks the total compensation of Leigh Goldie, Executive Director / CEO ($72,685) against every comparable organization that fit the selection criteria — 328 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 72nd percentile of comparable organizationswithin the typical range

Benchmarked executive: Leigh Goldie — reported title “Executive Dir.”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

328 organizations qualified on sector, size, and geography 328 within the band form the benchmarked peer set.

Distribution of comparable compensation

$708 total compensation of comparable organizations → $315,459 $72,685
$13,89110th
$29,13225th
$54,598Median
$75,26875th
$96,68190th
$72,685This org · 72nd
p10$13,891
p25$29,132
p50$54,598
p75$75,268
p90$96,681
$72,685

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to OH cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Illinois Spina Bifida Association IL$268,679 Executive Director $88,556 $84,627 2023
Theos Village The Tbck Foundation PA$268,612 President Secretary $15,000 $14,540 2023
Gaucher Community Alliance PA$268,783 Co-president $56,125 $54,405 2023
The Lung Transplant Foundation NC$268,002 Executive Director $123,869 $120,841 2024
Hope Happens Inc MO$267,866 Dir. Of Marketing & Commun $37,421 $37,421 2024
Biomedical Research Institute Of NJ$267,661 Key Employee $50,035 $42,178 2024
Epilepsy Foundation Of Wisconsin Inc WI$267,012 Executive Dir. $68,238 $67,285 2024
Act For Multiple Sclerosis CA$266,890 Executive Di $62,400 $50,873 2024
Tatton Brown Rahman Syndrome Community Inc NY$270,669 Executive Director $78,930 $67,340 2024
Heartbeat International Foundation Inc FL$266,644 Executive Director $100,000 $88,696 2024
The Autism Society Of Hawaii HI$266,429 Executive Director $62,251 $54,176 2023
Lymphangiomatosis & Gorhams Disease Alliance Inc FL$271,042 Executive Director $35,930 $31,868 2024
Hope For Children Research Found NJ$266,013 Director $92,503 $77,978 2024
Joe Beretta Foundation TN$271,831 Executive Director $62,391 $61,919 2024
All In For Miller Inc GA$265,432 Treasurer $36,000 $34,176 2024
5 Under 40 Foundation Corp NY$271,985 President $46,154 $40,540 2023
North Carolina Aids Action Network NC$264,894 Executive Dir. $120,750 $117,799 2024
The Tanner Foundation For Neurological AL$264,855 Executive Director $62,308 $63,554 2024
Down Syndrome Association Of VA$273,601 Executive Director $48,359 $44,085 2024
Down Syndrome Network Inc AZ$263,264 Executive Director $77,200 $72,169 2023
Childrens Oncology Camping Association Intl AL$274,478 Executive Director $50,000 $52,507 2023
Mesquite Cancer Help Society NV$262,030 Executive Administrator $12,075 $11,428 2024
The Color Of Autism Foundation MI$262,020 Chief Executive Officer $85,300 $85,583 2023
Sister2sister NJ$261,907 President $28,810 $25,003 2023
Hope Lives The Lydia Dody Breast CO$261,871 Executive Di $71,880 $65,075 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to OH cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to OH cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default72nd
Total compensation (D + F), as reported (no adjustments)67th
Reportable pay only (column D), adjusted74th
All sources (D + E + F), adjusted66th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Leigh Goldie) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 328 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $72,685 is reasonable (approximately the 72nd percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.