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PeerBasis
Compensation Comparability Determination

Down Syndrome Association Of

Executive Director / CEO

EIN 680605947
VA · NTEE G25
FY ending 2024-12-31
June 9, 2026

This analysis benchmarks the total compensation of Heather Padgett, Executive Director / CEO ($48,359) against every comparable organization that fit the selection criteria — 331 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 38th percentile of comparable organizationswithin the typical range

Benchmarked executive: Heather Padgett — reported title “EXECUTIVE DIRECTOR”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

331 organizations qualified on sector, size, and geography 331 within the band form the benchmarked peer set.

Distribution of comparable compensation

$777 total compensation of comparable organizations → $346,042 $48,359
$15,55510th
$32,34625th
$60,527Median
$83,34575th
$108,44090th
$48,359This org · 38th
p10$15,555
p25$32,346
p50$60,527
p75$83,345
p90$108,440
$48,359

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to VA cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Childrens Oncology Camping Association Intl AL$274,478 Executive Director $50,000 $57,597 2023
5 Under 40 Foundation Corp NY$271,985 President $46,154 $44,470 2023
Joe Beretta Foundation TN$271,831 Executive Director $62,391 $67,922 2024
Gina Quesenberry Breast Cancer ID$275,475 Executive Dir. $75,000 $82,631 2024
Lymphangiomatosis & Gorhams Disease Alliance Inc FL$271,042 Executive Director $35,930 $34,958 2024
Tatton Brown Rahman Syndrome Community Inc NY$270,669 Executive Director $78,930 $73,869 2024
The Whole Spectrum Autism Foundation NJ$276,577 Ceo $8,640 $7,989 2024
Community Center For The Blind CA$276,926 Exec Director $75,246 $69,282 2023
Spina Bifida Association Of Greater MA$276,967 Executive Director $75,070 $69,866 2024
The Barry L Joyce Cancer Support Fund Inc NC$277,491 Executive Director $91,023 $100,285 2023
Wylder Nation Foundation AZ$277,661 President/treasurer $79,600 $81,627 2023
Light Collective Inc OR$278,002 President $85,680 $84,841 2023
Gaucher Community Alliance PA$268,783 Co-president $56,125 $59,679 2023
Illinois Spina Bifida Association IL$268,679 Executive Director $88,556 $92,831 2023
Empowering Epilepsy OH$268,660 Executive Dir. $72,685 $79,732 2024
Theos Village The Tbck Foundation PA$268,612 President Secretary $15,000 $15,950 2023
Global Nerve Foundation GA$278,600 Executive Director $140,000 $145,791 2024
The Lung Transplant Foundation NC$268,002 Executive Director $123,869 $132,557 2024
Walking Strong Inc CA$279,221 Executive Di $24,000 $21,464 2024
Hope Happens Inc MO$267,866 Dir. Of Marketing & Commun $37,421 $41,049 2024
Check For A Lump AZ$279,490 Executive Director $63,059 $64,665 2023
Texas Central Hemophilia Association Inc TX$279,501 Executive Director $70,500 $75,196 2023
Biomedical Research Institute Of NJ$267,661 Key Employee $50,035 $46,267 2024
Epilepsy Foundation Of Wisconsin Inc WI$267,012 Executive Dir. $68,238 $73,808 2024
Act For Multiple Sclerosis CA$266,890 Executive Di $62,400 $55,805 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to VA cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to VA cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default38th
Total compensation (D + F), as reported (no adjustments)39th
Reportable pay only (column D), adjusted40th
All sources (D + E + F), adjusted33rd

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Heather Padgett) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 331 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $48,359 is reasonable (approximately the 38th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.