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PeerBasis
Compensation Comparability Determination

Asxl Rare Research Endowment Foundation

Executive Director / CEO

EIN 823890665
ME · NTEE H12
FY ending 2023-12-31
June 9, 2026

This analysis benchmarks the total compensation of Amanda Johnson, Executive Director / CEO ($105,900) against every comparable organization that fit the selection criteria — 26 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 92nd percentile of comparable organizationsabove the 90th percentile — board review recommended

Benchmarked executive: Amanda Johnson — reported title “Executive Director”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

26 organizations qualified on sector, size, and geography 26 within the band form the benchmarked peer set.

Distribution of comparable compensation

$8,524 total compensation of comparable organizations → $184,315 $105,900
$20,16610th
$36,79425th
$51,474Median
$82,47375th
$98,84690th
$105,900This org · 92nd
p10$20,166
p25$36,794
p50$51,474
p75$82,473
p90$98,846
$105,900

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to ME cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
The Norma Livingston Ovarian Cancer AL$284,799 Executive Director $79,417 $85,682 2023
Albie Aware Inc CA$288,875 Executive Director $111,546 $96,191 2023
Caroline Symmes Inc IN$290,676 President $8,333 $8,524 2024
Sugar Ray Leonard Foundation CA$302,891 Executive Director $96,000 $80,410 2024
Larry Burkett Foundation Inc GA$309,567 Ceo $36,000 $35,112 2024
A Glimmer Of Hope Inc PA$256,560 Executive Director $17,800 $17,727 2023
The Mauli Ola Foundation CA$243,078 Executive Dir. $61,101 $52,690 2023
New England Parkinsons Ride NH$330,154 Executive Director $108,500 $97,180 2024
Childrens Skin Disease Foundation CA$331,103 Executive Dir. $54,966 $46,040 2024
Reed Gastrointestinal Oncology Research AL$236,157 Executive Director $75,000 $80,917 2023
The Ryan Anthony Foundation TX$331,591 Exec. Dir./p $48,000 $47,951 2023
Asbestos Disease Awareness Organization Inc CA$332,179 President $120,000 $100,512 2024
Solving Kids' Cancer Inc NY$333,401 Former Exec $157,018 $137,630 2024
Cody Dieruf Foundation MT$224,998 Exec. Director $59,965 $62,701 2024
Have A Ball Foundation Inc CA$207,433 President $70,500 $59,051 2024
Team Bright Side Inc IL$368,815 Vice President $27,000 $26,509 2023
Emily Whitehead Foundation PA$369,089 President $12,000 $11,951 2023
Hannah's Hope For Giant Axonal NY$198,405 Executive Di $210,279 $184,315 2024
Wescoe Foundation For Pulmonary Fibrosis PA$196,214 Executive Director $45,000 $44,815 2023
Breast Cancer Fund Of Ohio OH$192,679 Executive Di $22,002 $22,605 2024
The Wunderglo Foundation CA$191,435 President/exec. $60,000 $50,257 2024
Rock County Cancer Coalition Inc WI$388,662 Executive Di $73,148 $74,102 2024
Foundation For Physical Medicine IL$398,965 Executive Director $27,886 $26,593 2024
All Sports Foundation Inc AZ$405,009 Ceo $88,962 $82,991 2024
Jb's Keys To Dmd Inc MA$415,859 President $48,000 $41,840 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to ME cost of living and 2023 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to ME cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default92nd
Total compensation (D + F), as reported (no adjustments)81st
Reportable pay only (column D), adjusted92nd
All sources (D + E + F), adjusted88th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Amanda Johnson) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 26 similarly situated organizations (Same NTEE sector (H12), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $105,900 is reasonable (approximately the 92nd percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.