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PeerBasis
Compensation Comparability Determination

Smith-kingsmore Syndrome Foundation

Executive Director / CEO

EIN 842913037
OH · NTEE G80
FY ending 2025-06-30
June 9, 2026

This analysis benchmarks the total compensation of Susan Dando, Executive Director / CEO ($22,500) against every comparable organization that fit the selection criteria — 190 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.

Compensation sits at approximately the 25th percentile of comparable organizationswithin the typical range

Benchmarked executive: Susan Dando — reported title “Executive Director”, a direct title match to the Executive Director / CEO role.

How comparable organizations were selected

190 organizations qualified on sector, size, and geography 190 within the band form the benchmarked peer set.

Distribution of comparable compensation

$727 total compensation of comparable organizations → $275,931 $22,500
$11,61210th
$22,62025th
$45,197Median
$64,67675th
$84,00290th
$22,500This org · 25th
p10$11,612
p25$22,620
p50$45,197
p75$64,676
p90$84,002
$22,500

Comparable organizations

Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to OH cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.

OrganizationStateRevenueMatched titleComp
(reported)
Comp
(adjusted)
FY
Testicular Cancer Society OH$168,040 President/director $100,000 $102,646 2024
Epilepsy Foundation Of Southeast Tenness TN$167,806 Executive Director $63,373 $62,893 2025
Carson's Crusaders Foundation TX$167,437 Executive Di $60,600 $58,747 2024
Obion County Cancer Agency TN$166,934 Director $17,671 $18,002 2024
Hss Screening And Early Detection Inc NY$165,500 President $36,000 $32,458 2023
Maine Society Of Eye ME$171,786 Mseps Exec. $2,500 $2,426 2024
Wetherald Behavioral Academy Inc GA$172,453 Board Member $26,372 $25,698 2024
Hearts Everywhere Reaching Out For GA$172,552 Secretary & Executive Dire $70,000 $68,211 2024
Austin Black Physicians TX$172,557 Executive Director $27,500 $26,660 2024
Sickle Cell Foundation Of Palm Beach County Inc FL$163,226 Ceo $110,479 $100,583 2024
Logan County Cancer Society Inc OH$172,885 President $111,927 $118,282 2023
Fibrofighters Foundation Inc CA$173,219 Medical Director $146,900 $122,933 2024
Move For Jenn Foundation NC$173,487 Executive Di $59,422 $59,503 2024
Camer Rand Fund Inc MA$162,490 Treasurer $8,400 $7,315 2024
Marthas Ranch Foundation TX$174,460 Executive Dir. $25,038 $24,990 2023
East Tennessee Kidney Foundation Inc TN$174,597 Executive Director $73,181 $72,627 2025
One Step Closer Therapeutic CA$174,828 Vp/secretary $53,000 $44,353 2024
Nicu Parent Network Inc IN$161,019 Executive Di $35,000 $36,827 2023
412 Thrive PA$175,282 Executive Dir. $14,000 $13,930 2023
Hope In Pain Inc CA$175,432 President $12,025 $10,361 2023
The Connecticut Orthopaedic Society CT$175,799 Executive Di $65,654 $61,420 2023
Fighting To Win Inc SC$160,178 President $23,587 $24,552 2023
Friendship Circle Of Va VA$176,021 Executive Dir. $30,600 $29,479 2023
Turner Syndrome Foundation Inc NJ$159,399 President $48,833 $42,254 2024
Manes & Miracles At Chaffee Crossing AR$178,339 Executive Director $17,000 $18,519 2024

Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to OH cost of living and 2025 dollars. Click any organization to verify the figure on ProPublica.

Methodology

Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to OH cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.

Sample, role match & sensitivity

Sensitivity — the subject's percentile under alternative compensation definitions:

BasisSubject percentile
Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default25th
Total compensation (D + F), as reported (no adjustments)24th
Reportable pay only (column D), adjusted31st
All sources (D + E + F), adjusted24th

If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.

Rebuttable presumption of reasonableness · 26 CFR 53.4958-6

Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:

Draft board minutes — executive compensation

  1. The compensation of the Executive Director / CEO (Susan Dando) was approved in advance by [the Board / Compensation Committee], composed of members with no conflict of interest with respect to the arrangement.
  2. Prior to its determination, the authorized body obtained and relied upon appropriate comparability data, namely the PeerBasis Compensation Comparability Determination dated June 9, 2026, comparing compensation against 190 similarly situated organizations (Same NTEE major group (G), nationwide + budget 0.67–1.5× revenue).
  3. The authorized body determined that total compensation of $22,500 is reasonable (approximately the 25th percentile of comparable organizations) and documented the basis for this determination concurrently, on [date], by a vote of [__ for / __ against].

Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.