Executive Director / CEO
This analysis benchmarks the total compensation of Connie Urbanek, Executive Director / CEO ($60,000) against every comparable organization that fit the selection criteria — 374 in total — drawn systematically from IRS Form 990 filings, not a hand-picked subset.
Compensation sits at approximately the 38th percentile of comparable organizationswithin the typical range
Benchmarked executive: Connie Urbanek — reported title “Executive Director”, a direct title match to the Executive Director / CEO role.
Each figure is Form 990 Part VII columns D + F (reportable pay plus other compensation and benefits; column F may include amounts from related organizations), normalized to KS cost of living (BEA RPP, 2023) and to its filing year (CPI-U); the reported amount is on each linked 990.
| Organization | State | Revenue | Matched title | Comp (reported) | Comp (adjusted) | FY |
|---|---|---|---|---|---|---|
| Down Syndrome Association Of Middle Tennessee | TN | $453,645 | Executive Director | $89,259 | $86,847 | 2024 |
| A Shared Vision Partners In Pediatric Blindness And Visual Imp | CO | $453,744 | Executive Director | $65,000 | $59,396 | 2023 |
| Neurology And Neuromuscular Care Center | TX | $453,769 | President | $12,000 | $11,111 | 2024 |
| Minnesota Colorectal Cancer Research | MN | $453,008 | Executive Director | $52,684 | $49,610 | 2023 |
| Coryell Autism Center | CA | $451,173 | President | $12,000 | $9,874 | 2023 |
| American Academy Of Pediatrics | CA | $456,564 | Executive Director | $133,530 | $109,882 | 2023 |
| Fishing For Md Foundation Inc | FL | $450,505 | Executive Di | $80,000 | $71,620 | 2023 |
| Help 4 Hd International Inc | CA | $449,867 | President | $54,792 | $45,088 | 2023 |
| The Breast Cancer Resource Center Of Santa Barbara | CA | $449,691 | Executive Director | $104,380 | $83,430 | 2024 |
| Hypoparathyroidism Association Inc | TX | $458,001 | Executive Director | $98,019 | $90,758 | 2024 |
| The Sickle Cell Association Of New Jersey | NJ | $448,862 | Executive Director | $55,154 | $45,582 | 2024 |
| The Foundation For Ucp Of Greater | CA | $458,528 | President / Ceo | $123,170 | $98,448 | 2024 |
| Southwest Kids Cancer Foundation Inc | AZ | $448,189 | Executive Director | $37,231 | $33,143 | 2024 |
| Cancer Support Community - California | CA | $459,287 | Executive Director | $100,452 | $80,290 | 2024 |
| Cancer Resource Center Of The Finger Lakes | NY | $459,404 | Executive Director | $58,609 | $49,022 | 2024 |
| Center For Medicine In The Public | NY | $447,500 | President | $232,552 | $194,514 | 2024 |
| Paralyzed Veterans Of America | DC | $462,882 | Executive Director | $41,124 | $33,404 | 2024 |
| Fabry Support & Information Group | MO | $443,701 | Executive Director | $80,600 | $81,354 | 2023 |
| Ateam Ministries | AL | $442,994 | President And Director | $65,800 | $65,800 | 2024 |
| Autism Society Of Texas | TX | $442,890 | Executive Director | $81,600 | $77,787 | 2023 |
| The Anchor Cross Cancer Foundation | AL | $464,644 | Foundation Director | $65,625 | $65,625 | 2024 |
| The Epilepsy Foundation Of Kentuckiana | KY | $465,180 | Executive Director | $120,390 | $123,261 | 2023 |
| Me Squared Cancer Foundation | TX | $442,014 | Executive Director - Start Date 7/16/2024 | $32,813 | $30,382 | 2024 |
| Down Syndrome Association Of South | TX | $441,715 | Executive Director | $85,229 | $78,916 | 2024 |
| 10000 Brains Neuro Ai Inc | MA | $465,837 | Chief Executive Officer | $102,577 | $87,843 | 2023 |
Comp (reported) is the figure on each organization's Form 990 (columns D + F); Comp (adjusted) normalizes it to KS cost of living and 2024 dollars. Click any organization to verify the figure on ProPublica.
Comparable organizations were drawn from electronically filed IRS Form 990 returns and matched on sector (NTEE code), budget (a size-adaptive revenue band that tightens as the organization grows), and geography (same-state first, broadening only when too few peers qualify); every organization within the band forms the peer set. To compare fairly across regions and years, peer compensation is normalized to KS cost of living (BEA Regional Price Parities, 2023) and to the subject's filing year (CPI-U). The figure benchmarked is Form 990 Part VII, Section A, columns D + F — reportable pay plus other compensation, benefits, and deferred amounts (column F may include amounts from related organizations) — with the chief executive matched by role. Related-organization amounts (column E) and institutional trustees are excluded. Full methodology: peerbasis.org/methodology.
Sensitivity — the subject's percentile under alternative compensation definitions:
| Basis | Subject percentile |
|---|---|
| Total compensation (D + F), cost-of-living + inflation adjusted — the PeerBasis default | 38th |
| Total compensation (D + F), as reported (no adjustments) | 34th |
| Reportable pay only (column D), adjusted | 40th |
| All sources (D + E + F), adjusted | 32nd |
If the percentile moves materially across these definitions, the result is sensitive to methodology choices, and the board should weigh which basis best fits its facts.
Compensation paid by a tax-exempt organization is presumed reasonable — shifting the burden to the IRS — when three requirements are met. This report supplies the comparability data for the second. The board should record the following in its minutes concurrently with its decision:
Draft board minutes — executive compensation
Sources: IRS Form 990 e-file data (apps.irs.gov); IRS Business Master File (NTEE classification). Every figure traces to an original public filing — click any organization above to verify it on ProPublica. PeerBasis is a service of Prismind Analytics; its methodology is published, was commissioned for independent adversarial review, and discloses its own limitations. This report is comparability data to support a board's good-faith determination under IRC 4958; it is not legal or tax advice. Generated by PeerBasis on June 9, 2026.